WHAT IS MYELOMA ACTION MONTH?

Myeloma Action Month is a global social awareness campaign that takes place every March to raise awareness of multiple myeloma—a cancer of the bone marrow plasma cells. Multiple myeloma is the second most common blood cancer in the world and the most prevalent among people of African descent. Yet, many have never heard of the disease, often confusing it with melanoma, the skin cancer.

Every March, we urge you to champion Myeloma Action Month to make an impact on those suffering from this blood cancer. Will you take action for the myeloma community?

JOIN THE MOVEMENT

Make an impact this Myeloma Action Month and be part of a global movement. #MyelomaACTIONMonth aims to strengthen our myeloma community and raise awareness through the power of personal stories and experiences shared by those affected by the disease. Stories evoke empathy and foster hope, helping us better understand ourselves and others.

This photo belongs to ...@.bobc8t1 – just sharing their awesome content! My Multiple Myeloma journey update

I have just completed my 13th week of Chemotherapy with only 3 weeks to go before being transferred to my Stem Cell transplant team in Leicester.

To be honest I now feel the best I have felt since being diagnosed and starting Chemotherapy, I can only praise the NHS and my MDT team they have been unbelievable❤️

I have now been off Thalidomide (the T in my DVTD Chemotherapy) for 4 weeks as it was giving me Neuropathy and tremors in both arms & hands which has really done the trick as both symptoms have dissapeared.

I had new full body MRi and PEt scans and received the results this week which showed that I have no new bone disease which I was really pleased about but unfortunately the MRi showed that my C3/C4 neck fracture is still unstable and I have been referred to a spinal specialist and must continue to wear my neck brace 24/7 indefinitely, which also means still no driving......but hey ho the real positive is no new bone disease😁

My 13 weeks of Chemotherapy has now reduced my paraprotein levels to 1.2 which is way below my target for my stem cell transplant(SCT) and a huge positive ahead of me starting my SCT treatment on the 13th of June, the only negative is my Kidney function has continued to drop and is now boarderline needing treatment but still only being monitored for now.

Im enjoying the sun and remain really positive & confident ill get into remission.

#multiplemyeloma
#multiplemyelomauk
#multiplemyelomawarrior
#myeloma
#myelomauk
#myelomaawareness
#multiplemyeloma
#myelomacommunity
#myelomaactionmonth
#myelomafighter
#bloodcancer
#bloodcanceruk

ZzHaveAgoodDayzZ

3 2
Open
This photo belongs to ...@.bobc8t1 – just sharing their awesome content! My Multiple Myeloma journey update I have just completed my 13th week of Chemotherapy with only 3 weeks to go before being transferred to my Stem Cell transplant team in Leicester. To be honest I now feel the best I have felt since being diagnosed and starting Chemotherapy, I can only praise the NHS and my MDT team they have been unbelievable❤️ I have now been off Thalidomide (the T in my DVTD Chemotherapy) for 4 weeks as it was giving me Neuropathy and tremors in both arms & hands which has really done the trick as both symptoms have dissapeared. I had new full body MRi and PEt scans and received the results this week which showed that I have no new bone disease which I was really pleased about but unfortunately the MRi showed that my C3/C4 neck fracture is still unstable and I have been referred to a spinal specialist and must continue to wear my neck brace 24/7 indefinitely, which also means still no driving......but hey ho the real positive is no new bone disease😁 My 13 weeks of Chemotherapy has now reduced my paraprotein levels to 1.2 which is way below my target for my stem cell transplant(SCT) and a huge positive ahead of me starting my SCT treatment on the 13th of June, the only negative is my Kidney function has continued to drop and is now boarderline needing treatment but still only being monitored for now. Im enjoying the sun and remain really positive & confident ill get into remission. #multiplemyeloma #multiplemyelomauk #multiplemyelomawarrior #myeloma #myelomauk #myelomaawareness #multiplemyeloma #myelomacommunity #myelomaactionmonth #myelomafighter #bloodcancer #bloodcanceruk ZzHaveAgoodDayzZ
View on Instagram

HOW TO TAKE ACTION DURING MYELOMA ACTION MONTH

Take Action by Sharing, Liking, and Commenting on stories from others in the myeloma community.

TAKE ACTION

What is one thing you wish people knew about myeloma? Share your answer in a social post along with #MyelomaActionMonth

SHARE

Take a video of yourself answering the question “What do you wish people knew about myeloma?” and SHARE it on social with #MyelomaActionMonth

FOLLOW

Follow the hashtag #MyelomaActionMonth so you don’t miss posts from others in our community.

GET INSPIRED

See the social activations from people just like you from around the world doing their part to raise awareness of multiple myeloma. Share their posts or let their stories inspire you to share your own.

SOCIAL MEDIA TOOLKIT

Download myeloma facts, stats, and other graphics to share on social media and help spread the message.

JOIN THE MOVEMENT

Whether as an individual or as a group, help shine a light on myeloma on a global scale when you choose to take part in Myeloma Action Month.